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Research Study

The Royal National Hospital of Rheumatic Diseases (RNHRD) Bath is looking for couples to take part in a research study to discover the patterns of communication and collaboration between someone living with Complex Regional Pain Syndrome (CRPS) and their support partner.

This is an important study that will enable the hospital to create future training needs you as a couple may have in understanding the importance of rehabilitation strategies and how this might work in practice.

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Welcome to CRPS Community

Welcome to the UK's first and best community website dedicated to Complex Regional Pain Syndrome or to those that are sufferers or involved in the illness referred to simply as CPRS. Please browse the website, you can find a variety of information including research and regular information from the UK's leading CRPS expert Dr. Karen Rodham and the outstanding Olympic Archer Danielle Brown.

  • Dr. Karen Rodham is a Chartered Health Psychologist, specialising in Chronic Pain. Karen shares her time between teaching at the University of Bath and practicing at the Royal National Hospital of Rheumatic Diseases.

We also offer downloadable documents that will help you cope with your illness and where practicable relevant information on benefits, disability discrimination in employment and info on day to day life.

Of course we also offer a free to use popular members only forum, which we advise you to join, its a great place to meet new people, share stories and get advice.

What is CRPS?

Complex regional pain syndrome (CRPS), formerly Begum Syndrome, is a chronic progressive disease characterized by severe pain, swelling and changes in the skin.

  • Danielle Brown MBE is a double Paralympic archery champion. Danielle suffers from CRPS in the feet and competes sitting down or leaning on a stool. In 2012 Danielle won the Individual Gold Medal in the Paralympic games.

It often affects an arm or a leg and may spread to another part of the body and is associated with dysregulation of the autonomic nervous system resulting in multiple functional loss, impairment and disability.

Though treatment is often unsatisfactory, early multimodal therapy can cause dramatic improvement or remission of the syndrome in some patients. The International Association for the Study of Pain has proposed dividing CRPS into two types based on the presence of nerve lesion following the injury.

  • Type I - Formerly known as reflex sympathetic dystrophy (RSD), Sudeck's atrophy, reflex neurovascular dystrophy (RND) or algoneurodystrophy, does not have demonstrable nerve lesions.
  • Type II - Formerly known as causalgia, has evidence of obvious nerve damage.

The cause of this syndrome is currently unknown. Precipitating factors include injury and surgery, although there are documented cases that have no demonstrable injury to the original site.

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start.txt · Last modified: 2014/08/02 14:04 by admin